Where do I start?
Anna has been in hospital again last weekend, for the third time in less than 2 months. Unfortunately, this episode has been the worst by far and I have never been so frightened in my life (Not even the severest of panic attacks made me as scared as Friday night).
Basically, the week followed exactly the same pattern as the previous 2 occasions. Monday and Tuesday saw a dreadful cold followed by 2 days of coughing. Friday was a good day but, by then and unbeknown to us, the virus had gone to the chest and was starting to constrict the airways. It follows the same pattern every time so, by Wednesday, I had a horrible feeling that we would end up back in hospital. However, no matter how much you try telling the doctors, they don't want to know unless you are displaying the actual symptoms of asthma so they send you home again with a feeling that you are wasting their time.
Friday night saw us putting Anna to bed as normal. However, I was conscious that the virus might be lingering so I lay in bed in the next room, just to make sure. At 9.45pm, Anna let out a little yelp and I went in to see Anna wriggling around her cot as though something had bitten her and crying in a most unusual way. I picked her up and lay her on our bed but it soon became apparent that all was not well. She was desperately trying to find a position to be comfortable and she began drawing her chest in and using her tummy muscles to breathe in. However, at this point, it was not as bad as I had seen previously so we gave her the inhaler but still phoned the doctor, to be on the safe side. The out-of-hours GP advised us to go and see him. Apparently, they don't do home visits for us city folk (unless we can't get there) so we had to head for a clinic in the town centre. Having never needed an out of hours GP before, we quickly tried to memorise the directions and got on our way. By the time that we had got onto the main road into Chester, it was apparent that our baby was deteriorating fast. By this time, she was getting very distressed. She couldn't get enough air in to breathe properly and, as a result, was panicking, which just made the situation worse. It is very hard to explain to a 17 month old baby that she needs to calm down and try to conserve energy.
Unfortunately, the clinic is on a busy dual carriageway which skirts along the main high street. The out-of-hours receptionist had told us that it was at the high street end of the carriage way so we headed for that point, only to find it wasn't there. By this tine, we had entered a one way street so we had no choice but to carry on through it. Anna was deteriorating at a staggering rate and her breathing had become something which I can only describe as something you would hear in a horror film, as she gasped for air. Both James and I thought she was about to pass out so I screamed at James to stop the car and I bolted out, grabbing Anna and racing through Chester town centre. Unfortunately for James, he had screeched to a halt in the middle of the road which leads through Chester's town centre. At first, he didn't care and ran behind me and Anna but then people were starting to point out that the whole of Chester would come to a standstill if he left it there so he was forced to turn back. He would try and find his own way to the clinic by car. (I didn't know any of this until the next day. At this point, I had tunnel vision with only one aim, to get to the clinic before Anna became unconscious).
I'm not sure what the clubbers and revellers thought as they saw me and Anna racing towards them, with me screaming for someone to tell me the way to the clinic. Finally I came to a packed bar with some bouncers on the door. I stopped just long enough to ask them which way I should go. They had no idea either but they did grab a taxi driver who could tell me. Basically, he told me how to get there by using lots of back streets and alley ways. He then informed me that there was a problem... that I would have to cross a duel carriageway of 4 lane traffic. I didn't care. I just knew that I would have to get across somehow.
I now had a very limp baby in my arms who was struggling desperately. In the pit of my stomach, I was terrified beyond belief but I didn't have time to acknowledge that. Adrenaline took over and I pushed it to one side and ran faster than I have ever done, down cobbled streets and back alleys in semi-darkness. I wasn't sure where I was going as I couldn't recall any of the taxi driver's instructions (due to my mind racing) but, sub-consciously, my mind must have remembered and I finally ended up at the duel carriageway. As I briefly stopped to take it in, I could hear myself singing to Anna and telling her everything would be OK (again, I did this sub-consciously without even realising it). Maybe I was trying to convince myself as much as Anna. By this time, Anna had calmed down but was obviously still gasping for breath.
Miraculously, the carriageway, that is normally streaming with traffic, was empty with no cars insight, so getting across was fairly straight-forward (The traffic was probably all backed up behind the car that James had deserted in the middle of the road). However, now that I was on the correct side of the carriageway, I wasn't sure where the clinic was. Should I go left or right? Thankfully, I saw a blue sign in the distance. I didn't have a clue whether it was the clinic but I had the image pop into my head, of the NHS logo which happened to be blue. I also noticed that there was a hotel next to this blue sign and I decided that, if it turned out not to be the sign for the clinic, I would run into the hotel and ask for them to phone for an ambulance. Thankfully, my instinct was right and the blue sign did indicate the clinic.
When I arrived, the door was locked so I screamed for someone to help me and they came to open the door. I then waited at the receptionist desk while the receptionist chatted on the phone. Now normally, I am very polite but not tonight. "Will someone please help me, my daughter can't breathe'. I yelled, to which another receptionist appeared from under a desk (!!) and showed me straight to the doctor. It took all of 5 seconds for him to say 'Hospital now'. He then asked whether I had someone to take me quickly or whether I would need an ambulance. At this point, I remembered that I had left James lost in the middle of Chester after I had dived out of the car.
Thankfully, just as the doctor was phoning the hospital to tell them that we were coming, he turned up (after the same taxi driver had showed him where to go when using a car) and we sped to the hospital.
As we arrived at the hospital, I dived out of the car again with Anna and she threw up all over me. I later found out that there was very little air getting into her lungs at this point so her body was trying to expel anything it had, in an attempt to get oxygen. I ran into Ward 30 covered in sick and the nurse told me to lie her on the bed before leaving to get some water to clean up the sick. 'Anna needs a doctor, not clean hair' James said. I later found out that this nurse was useless (I hasten to add that every other nurse, doctor and nursing assistant in the hospital is amazing and brilliant). However, she then informed us that she had alerted the doctor but was just trying to get her observations done before the doctor came but she wanted to clean up the sick before she started to look at her. Aghhhhhh! Thankfully, the doctor arrived very quickly and, once she had quickly established that Anna was in trouble, immediately put an oxygen mask on her and went to get the registrar. Within 10 minutes, Anna was hooked up to monitors, had an oxygen mask and drugs being administered. At this point, she was heading for the high dependency unit and I knew things were serious when they said that there would have to be a medical trained person in the room at all times. Her breathing was 60 breaths per minute (it should be no more than 20) and there wasn't even any wheezing because it had gone beyond that stage by now. Wheezing is when the airways are blocked so the air that is getting through only has a little room and therefore makes a whistling noise as it passes through. There was so little room in Anna's airways that the air couldn't get through so the wheezing wasn't even happening.
For the next 2 hours, Anna was given drugs via an oxygen mask and monitored with screens bleeping every so often. Thankfully, it then became under control and, at 1.30am, Anna was stable enough to be moved to a normal ward. She still had to wear the oxygen mask all the time as her oxygen levels were dramatically low but she was out of immediate danger.
It was then time to start demanding answers. We had been in hospital 3 times in the past 2 months and this was out of control. There was no way that I was going to let Anna suffer like this and I would refuse to leave the hospital until my little girl was better.
After lots of tears and frustration, the consultants sat us down and explained what was going on. Basically, Anna suffers from Asthma which is looking quite severe at the moment. The main trigger for her asthma is cold viruses which is then travelling to her chest. In both adults and babies, cold viruses are not normally harmful but, with asthmatics, they become more worrying as asthma suffers are susceptible to the virus going to the chest and blocking the airways. For babies, it can be quite common because their airways are so small that it can easily become blocked, which is called Bronchialitus. However, now that Anna has been in 3 times, with severe symptoms on 2 of those 3 occasions, it is now time for more action to be taken. Although NHS guidelines still dictate that we are not allowed to label Anna as an asthmatic, that is how she is now being treated by medical staff. She has been given another inhaler which she must take every day, regardless of symptoms which may or may not appear. This inhaler will hopefully prevent most viruses to stick to the airways but unfortunately, it takes up to 8 weeks to get into the system so they did warn us that we may be back in hospital before then. She is also going to be reviewed every 2 months.
The community nurse told me that Anna is at the beginning of a long road and this may take several attempts before we get it under control but we have started on the right track and we will get there. Meanwhile, we have an agonising wait to see what happens next. The problem is that there are a millions of viruses out there and Anna is picking them up with alarming frequency at the moment. This could be because her immune system is low after a dreadful 2 months so she is picking them up easily and they are going to the chest, which is then causing the breathing difficulties, making her immune system even lower. It is a vicious circle. What we need is several weeks of Anna being clear of any virus and her lungs will then be given a chance to recover properly. It is a terrifying time for us at the moment.
Even as I write this, I feel like I should be sat in her bedroom, counting her breaths per minute and watching her as she sleeps. However, unless I do that 24 hours a day, it is not going to help and, even if I did do that, there would be no stopping Anna from catching a virus. We asked the consultant again whether Anna should be going to the clubs and classes and whether we should stop going. Her answer was a very firm yes, that we should still be going. As she said, there are viruses everywhere and she could just as easily catch one from waiting at the till in Tesco. The consultant also pointed out that if she didn't get exposed to them now, she would get exposed to them at school and that may mean going through the nightmare while Anna is in her first year at school, which would be very unsettling for her.
There is some preventative action I can take now. I must not dust or hoover while Anna is around and all aerosols are banned. I must always have windows open in the house and keep the house as cold as possible. Central heating is to be turned off unless the house temperature falls below 16 degrees. Anna must not be allowed any cuddly toys in her cot and any soft toys that she plays with must be washed daily, frozen in the freezer and then defrosted (to kill any dust mites, who can't survive in sub-zero temperatures)
So we wait and see what happens now. We hope that the other inhaler starts to work quickly and that Anna can be free of these viruses, just long enough to clear her lungs for a while. The summer may also help as the weather will become nicer and the viruses may not be around so much. The problem is that we live with uncertainty and the doctors have told us that this just has to become normal for us now. In a previous post, I said that we will just have to pick ourselves up after each episode, dust ourselves down and get on with life. The problem is that it gets more and more difficult to do that with each episode that passes as you start to get more tired and it is difficult knowing that you pick yourself up, only to wait for the next knock down (when the asthma strikes). However, for Anna's sake, we will keep getting up and going to the clubs and classes (which Anna loves more and more as she gets older). Please bring on the sunshine again.... soon!