It has only been a week of not going to the clubs and already Anna and I are going slightly round the twist. Ironically, when I chose to give up work (which I was very very fortunate that I could do), the thought of baby groups and classes filled me with dread and I couldn't think of anything worse. Nowadays, I am filled with dread thinking that I can't go! I was even doing our shop in Sainsbury's yesterday when I saw the swim nappies on the shelf and started to cry. I miss it so much and it makes it even worse when I think that Anna is missing out. I suppose it is guilt. It doesn't help that Anna's swim teacher was on the TV last night (she also appeared in the Daily mail last week). One of her pupils (in a different class to Anna), a 2 year old girl, accidentally wandered into the family pool while her mum was in another room. Thankfully, because Lindsay had taught her how to swim to the surface, swim to the side and hold on, she was able to stay afloat until her mum realised what had happened. What if Anna forgets how to do that if I don't go to the lessons.
I think Anna is missing her groups too. There are only so many hours that she can take of her Mummy after all! I suppose it doesn't help when I am thinking of all the money being lost. These baby groups ask for money at the beginning of term (so to know whether it is worth running the class in the first place) and, without doctors approval that I should give them up, there is no way of getting my money back. I realise that this is a far less important reason about why I should be gutted about not going to the classes but is still makes me rather p'ed off.
Instead, Anna and I are going on long walks whilst avoiding main roads (air pollutions are not good for asthma sufferers). The problem is that, despite living next to a greenway route and several large parks, there are only so many times that you can do the same walk without being able to start recognising every individual tree. Anna and I have even tried to make it more exciting by giving the tree a name such as Teresa or Terry but that starts to lose it's fun element quite quickly!
Obviously missing the clubs would be more than worth it if it helped Anna to recover and not suffer any more attacks but I'm not even sure it will (as doctors keep reminding me)
Anna has started to have a cough and dry sneeze again and I am petrified that it is gearing up for another attack. Therefore we went to see the GP yesterday and basically demanded a 2Nd opinion. I still think Chester NHS are great but thought that someone else might be able to do more tests to determine the cause of all this, rather than just trying to guess. We are concerned that this is following a very regular pattern where Anna is getting a cold on Monday, cough on Wednesday and, by Friday night, is ending up in hospital with acute asthma symptoms. She then takes a week to recover before it starts all over again on the following Monday again. This has been going on for more than 8 weeks now (resulting in 4 occasions of being admitted into hospital). The pattern just seems far too predictable and regular. I am so used to the pattern that I can predict what will happen on an hour to hour basis.
At first, the GP seemed to suggest that it was just asthma and there wasn’t anything that could be done. However, he then did admit that the pattern did indeed seem strange and that he would refer us. (We are very very lucky that James' company provide Anna with private health care... probably as consolation for making her Daddy be on-call for 24 hours a day, every day) We have later found out today that NO private hospital in the area will take children under 3. Apparently, the NHS is rather good at seeing children quickly so private hospitals don’t seem too keen. They also think it is not worth the extra thousands of pounds in insurance fees to take children under 3 so we are back to square 1.
However, I have spent virtually every evening recently doing background research and am now armed with some facts and figures to annoy the NHS medical team with, which they hate more than anything. I always get asked if I was medically trained, just so that they can prove a point that they are far more superior than me, and then they tell me to shut up, albeit in a polite way! Basically, I have found out that 85% of children with asthma are allergic to house dust mites so that is probably why they have told me that is why Anna is probably allergic to, which is the cause of the asthma. (Please remember that there are millions of house dust mites living in sofas and mattresses and curtains, in even the cleanest of homes... my house is clean... honest!) However, the allergy UK and British Allergy Foundation websites as well as other medical research all suggest that this should be proved or disproved with some allergy tests, which we have not been offered (You can prove if Anna is allergic to house dust mites by doing the tests). You also have to bear in mind that 15% of children are allergic to other things which cause asthma such as food products. Anna’s pattern would suggest that this may be the case. Therefore, I think I am going to insist on some tests being carried out to prove what she may/may not be allergic to, hence what the trigger is for these attacks.
I also mentioned to the doctor about Anna's classes and that I have made the decision not to attend them for a while. He, like every other medical person that I have spoken to since this all started, shot me down in flames and said that he 'strongly disagreed' with my decision and that I should continue to take her. However, he is not the one who has to deal with her gasping for breath so it is easier said than done for him. I just want to protect her from the viruses which are also a trigger for her asthma attacks.
Interestingly, while doing my research, I typed in asthma and baby into the UK search engine and the following articles appeared on the first page (so I didn’t have to search for it very far)
http://www.telegraph.co.uk/news/uknews/1431400/Swimming-pool-vapours-linked-to-child-asthma.htmlhttp://www.telegraph.co.uk/news/1508249/Baby-pools-may-increase-asthma-danger.html
I know that it says that babies who are more prone to asthma were the only ones likely to be affected by the swimming but it suggests that swimming obviously doesn’t help sufferers like Anna. The other interesting thing is that we changed our swimming venue in February, which is when this asthma nightmare kicked off. Could there be a link between the swimming pool and her asthma? If this article has any truth in it, it looks like I may have to stay away. However, I am also more than willing to be proved wrong and, if Anna gets ill again and we haven't been swimming, I can obviously dismiss it and continue to go swimming again. It is so sad to think that Anna may have to miss out on one of her favourite things and I even have tears in my eyes typing this but, obviously, her health is more important and it may help her so that she can continue to enjoy other things.
Meanwhile, I am still in a muddle about the classes. I am starting to think that I may attend one or two a week (Playgroup and Jo Jingles). That is still half of what I used to do and it may just stop me and Anna from talking to trees! On second thoughts... maybe it won't but it would definitely give us more things to talk to the trees about!
